After finally seeing a pulmonologist and getting her involved, we detected that Ruby's 24 hour cough was from the NJ tube irritating her throat. We use a 5 French NG tube, but an NJ tube only comes in an 8 and it was just too big for her little airways. I feel so bad that it took a week to figure that out!! Since that has been changed, she has weened off of her oxygen also. She's congested still, but doesn't lose oxygen while coughing anymore.
The pulmonologist wants us to have her sleep (prone) on her tummy, and said while they say not to, it is actually safer for some babies. Ruby loves it and it prevents her from coughing and/or choking while congested. I can't believe what a difference it makes.
She still isn't great at moving her head from side to side yet, but just being on her tummy for naps has made it a bit stronger.
I can't wait to get home now and be in a routine, even if it is a difficult one, and make my own dinner and get the kids off to school, and exercise, and sleep in a bed...it looks like tomorrow afternoon at the latest, unless there is some sort of slip up!
So glad you some new tricks to help her out! Wahoo! She's so adorable & absolutely edible in that bumbo picture! :) I sure hope the coming home happened!!!!!
ReplyDeleteSO glad you're home. Have you been putting rubber bands around her arms again?
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